Books & Publications

  • After the Diagnosis: The Journey Beyond
    This book offers insight and support as you experience the different stages associated with receiving the diagnosis of a chronic illness.  It was written by authors who have first-hand experience walking down the path of facing chronic illness.  GET IT NOW from our Book-tique.
  • The Pillow Fort Magazine
    This is a bi-monthly digital magazine for young people with chronic illness “to make chronic illness suck less!”  This beautifully-designed magazine is packed full of content (articles, photography, comics, giveaways and more) from young people around the world living with chronic illness. This magazine is no longer in publication, but you can ask the publisher about back issues.
  • When Language Runs Dry: A Zine for People with Chronic Pain
    A collection of essays and comics from a variety of authors who live with chronic pain.  Their stories testify that the chronic pain experience is not just about the physical sensations, but also has serious emotional and social implications.  Read about their struggles and how they keep living as full of a life as possible.
  • Options for Avoiding & Managing Medical Debt
    This guide gives an overview of (US) programs and strategies for seeking free or reduced-cost health care along with information about managing medical debts.  It covers topics such as sources of free health care, discounts for medical care, bankruptcy,  your credit report and score, etc.  Click here to READ IT NOW.  From the National Endowment for Financial Education (NEFE) this is the third in a series of (three) publications titled Managing Medical Bills: Strategies for Navigating the Health Care System.  This booklet is intended for people who didn’t find the help they need from the first two booklets (Understanding Private Health Insurance and Medicare and Medicaid for People with Disabilities). (The complete series is available on NEFE’s Smart About Money website.)
  • But You LOOK Good!
    From the Invisible Disabilities Association (IDA), this 60-page booklet is a good resource for our loved ones! It will help family and friends understand that even though we who are living with chronic illness or pain may LOOK good it doesn’t necessarily mean that we FEEL good. It talks about how to understand and encourage people living with chronic illness and pain, what to say, what not to say and how to help.  Also available is the 3-fold pamphlet, But They LOOK Good, an excerpt from the booklet that highlights the paradox of looking good but feeling bad.  Both are available from the IDA Store.

Know of a book or publication that’s especially helpful?  TELL US and we’ll consider listing it!